Login | Register

Understanding the Role of Personal Transformation in Adults who have Survived Childhood Cancer

Title:

Understanding the Role of Personal Transformation in Adults who have Survived Childhood Cancer

Goldstein, Cathy A. (2010) Understanding the Role of Personal Transformation in Adults who have Survived Childhood Cancer. Masters thesis, Concordia University.

[img]
Preview
Text (application/pdf)
Goldstein_MA_F2010.pdf - Accepted Version
737kB

Abstract

Understanding the Role of Transformation in Adults who have Survived Childhood Cancer
Cathy Ann Goldstein
The narrative stories of transformation of childhood cancer survivors were examined in comparison to the established research in the same area. The established research that is available is based on statistical criteria, which examines the quality of life of adult survivors. Based on such criteria, the quality of life of childhood cancer survivors has indicated mixed results indicating that more research is needed to better serve the growing population of survivors. In contrast, this study sought to compare the outcome of a quality of life survey versus the individual stories of survivors. The findings suggest that the survey does not accurately reflect the quality of life of the adult survivors. Also by including narrative stories this study offers a forum for survivors by giving them a voice.
Keywords: adult, cancer, childhood, quality, life, narratives, stories, survivors

Divisions:Concordia University > Faculty of Arts and Science > Education
Item Type:Thesis (Masters)
Authors:Goldstein, Cathy A.
Institution:Concordia University
Degree Name:M.A.
Program:Child Study
Date:31 August 2010
Thesis Supervisor(s):Petrakos, Hariclia
Keywords:Keywords: adult, cancer, childhood, quality, life, narratives, stories, survivors
ID Code:6826
Deposited By: CATHY ANN GOLDSTEIN
Deposited On:27 Oct 2010 18:24
Last Modified:18 Jan 2018 17:29

References:

References

Achenbach, T. M. (1991a). Manual for the Child Behavior Checklist/4–18 and 1991 Profile. Burlington: University of Vermont Department of Psychiatry.

Aldwin, C. (1994). Stress, coping, & development. New York: Guilford.

Barrera, M., Shaw, A.K., Speechley, K.N., Maunsell, E., & Pogany, L. (2005). Educational and social late effects of childhood cancer and related clinincal, personal, and familial characteristics. American Cancer Society, 104(8), 1751-1760.

Blaauwbroek, R., Groenier, K.H., Kamps, W.A., Meyboom-de Jong, B., & Postma, A.(2007). Late effects in adult survivors of childhood cancer: the need for life-long follow-up. Annals of Oncology, 18(11), 1898-1898.
Bolig, R. & Weddle, K.D. (1988). Resiliency and hospitalization of children. Care of Children’s Health, 16(4), 255-260.

Boyle, M.H., Offord, D.R., Hofmann, H.G., Catlin, G.P., Byles, J.A., Cadman, D.T.,Crawford, J.W., Links, P.S., Rae-Grant, N.I., & Szatmari, P. (1987). Ontario Health Survey. Arch Gen Psychiatry, 44(9), 826-831.

Canadian Cancer Society (n.d.) Retrieved September 20, 2008, From http://www.cancer.ca/quebec/publications.aspx?sc_lang=en

Cantrell, M. & Lupinacci, P. (2008). Investigating the determinants of health-related quality of life among childhood cancer survivors. Journal of Advanced Nursing,64(1), 73-83. doi: 10.1111/j.1365-2648.2008.04760.x

Carver, C. (1998). Resilience and thriving: Issues, models, and linkages. Journal of Social Issues, 54(2), 245-266.

Creswell, J.W. (2005). Educational research: Planning, conducting, and evaluating quantitative and qualitative research. Upper Saddle River, New Jersey: Pearson Education, Inc.

Davies, C.A. (1999). Reflexive ethnography: A guide to researching ourselves and others. London: Routledge.

Donze, J.R. & Tercyak, K.P. (2006). The survivor health and resilience education(SHARE) program: Development and evaluation of a health behaviour intervention for adolescent survivors of childhood cancer. Journal of Clinical Psychology in Medical Settings, 13(6), 169-176.

Eiser, C., Hill, J.J., & Vance, Y.H. (2000). Examining the psychological consequences of Surviving childhood cancer: Systematic review as a research method in pediatric psychology. Journal of Pediatric Psychology, 25(6), 449-460.

Forsbach, T. & Thompson, A. (2003). The impact of childhood cancer on adult survivors’ interpersonal relationships. Child Care in Practice, 9(2), 117-128.

Fottland, H. (2000). Childhood cancer and the interplay between illness, self-evaluation and academic experiences. Scandinavian Journal of Educational Research, 44(3), 253-273.

Fraser, D.F.G. (2003). Strangers in their own land: Friendship issues when children have cancer. Journal of Research in Special Educational Needs, 3(3), 147-153.

Glaser, B.G., & Strauss, A.L. (1967). The discovery of grounded theory: Strategies for qualitative research. New York: Aldine DeGruyter.

Goldsby, R.E., Taggart, D.R., & Ablin, A. (2006). Surviving childhood cancer: The impact on life. Pediatric Drugs, 8(2), 71-84.

Gray, R.E., Doan, B.D., Shermer, P., Vatter Fitzgerald, A., Berry, M.P., Jenkin, D., & Doherty, M.A. (1992). Surviving childhood cancer: A descriptive approach to understanding the impact of life-threatening illness. Psycho-Oncology, 1, 235-245.

Grey, M. & Thurber, F.W. (1991). Adaptation to chronic illness in childhood: Diabetes mellitus. Journal of Pediatric Health Care, 3, 336-341.

HyperRESEARCH 2.8.3 (n.d.) Retrieved May 2010,
From http://www.researchware.com/products/hyperresearch.html

Imerman’s Angels (n.d.) Retrieved Febuary 2010,From http://www.imermanangels.org/

Johnson, J.L. & Wiechelt, S.A. (2004). Introduction to the special issue on resilience. Substance Use and Misuse, 39(5), 657-670.

Kameny, R.R. & Bearison, D.J. (2002). Cancer narratives of adolescents and young adults: A quantitative and qualitative analysis. Children’s Health Care, 31(2), 143-173.

Lahteenmaki, P.M., Huostila, J., Hinkka, S., & Salmi, T.T. (2002). Childhood cancer patients at school. European Journal of Cancer, 38(9), 1227-1240.

Langeveld, N.E., Grootenhuis, M.A., Voute, P.A., De Haan, R.J., & Van Den Bos, C.(2004). Quality of life, self-esteem and worries in young adult survivors of childhood cancer. Psycho-Oncology, 13, 867-881.

Langeveld, N.E., Ubbink, M.C., Last, B.F., Grootenhuis, M.A., Voute, P.A., & De Hann,R.J. (2003). Educational achievement, employment and living situation in long-
term young adult survivors of childhood cancer in the Netherlands. Psycho-Oncology, 12, 213-225.

Lee, Y. & Santacroce, S. (2007). Posttraumatic stress in long-term young adult survivors of childhood cancer: A questionnaire survey. International Journal of Nursing Studies, 44(8), 1406-1417. doi:10.1016/j.ijnurstu.2006.07.002

Livestrong.org, (n.d.) Retrieved February 2010, From http://www.livestrong.org/

Mackie, E., Hill, J., Kondryn, H., McNally, R. (2000). Adult psychosocial outcomes in long-term survivors of acute lymphoblastic leukaemia and Wilms’ tumor: A controlled study. The Lancet, 355, 1310-1314.

Orbuch, T.L., Parry, C., Chesler, M., Fritz, J., & Repetto, P. (2005). Parent-child relationships and quality of life: Resilience among childhood cancer survivors.Family Relations, 54, 171-183.

Parry, C. (2002). The psychosocial experiences of long-term survivors of childhood cancer across the lifespan. ProQuest Information and Learning Company, Doctoral Dissertation, University of Michigan, 2002. (UMI #: 3058028)

Parry, C. (2003). Embracing uncertainty: An exploration of the experiences of childhood cancer survivors. Qualitative Health Research, 13(1), 227-246.

Parry, C. (2008). Survey Codebook. Retrieved on February 18th, 2008 (personal communication).

Parry, C. & Chesler, M. (2005). Thematic evidence of psychosocial thriving in childhood cancer survivors. Qualitative Health Research, 15(8), 1055-1073.

Planet Cancer, (n.d.) Retrieved February 2010, From http://www.planetcancer.org/

Recklitis, C.J., Parsons, S.K., Shih, M.C., Mertens, A., Robison, L.L., & Zeltzer, L.(2006). Factor structure of the Brief Symptom Inventory-18 in adult survivors of child hood cancer: Results from the Childhood Cancer Study. Psychological Assessment, 18(1), 22-32.

Taieb, O., Moro, M.R., Baubet, T., Revah-Levy, A., & Flament, M. (2003). Posttraumatic stress symptoms after childhood cancer. European and Adolescent Psychiatry,
12, 255-264.

Tedeschi, R.G. & Calhoun, L.G. (1995). Trauma & transformation: Growing in the aftermath of suffering. Thousand Oaks, California: Sage Publications, Inc.

Tedeschi, R.G. & Calhoun, L.G. (1996). The posttraumatic growth inventory: Measuring the positive legacy of trauma. Journal of Traumatic Stress, 9(3), 455-471.

Vinson, J.A. (2002). Children with asthma: Initial development of child resilience model. Pediatric Nursing, 28(2), 149-158.

Werner, E., & Smith, R. (1977). Kauai’s children come of age. Honolulu: University of Hawaii Press.

Werner, E., & Smith, R.S.(Eds.). (1992). Overcoming the odds: High risk children from birth to adulthood. Ithaca, NY: Cornell University Press.

Woodgate, R.L. (2006). Life is never the same: Childhood cancer narratives. European Journal of Cancer Care, 15, 8-18.

Zebrack, B.J. & Chesler, M. (2001). Health-related worries, self-image and life outlooks of long-term survivors of childhood cancer. Health and Social Work, 26(4), 245-256.
All items in Spectrum are protected by copyright, with all rights reserved. The use of items is governed by Spectrum's terms of access.

Repository Staff Only: item control page

Downloads per month over past year

Research related to the current document (at the CORE website)
- Research related to the current document (at the CORE website)
Back to top Back to top