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The Dying Roles: A creative autoethnographic exploration of roles at the end of life


The Dying Roles: A creative autoethnographic exploration of roles at the end of life

Cormier, Émilie (2020) The Dying Roles: A creative autoethnographic exploration of roles at the end of life. [Graduate Projects (Non-thesis)] (Unpublished)

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I chose to conduct a creative autoethnographic exploration to better understand the implication of roles at the end of life and the possible creative interventions that can be built on the use of roles. To do so, I created a short animation film based on roles that emerged from my analysis of the verbatim of Elizabeth Kübler-Ross interviews with dying women included in the book Death and dying (1969/2005). I used Robert Landy’s role method (1992), role taxonomy (1991a) and role theory (1991b) as well as his artwork to frame my exploration of these emerging roles. The creation of the short film gave me insight on how roles can be linked to some suffering experience as well as how they can contribute to positive outcomes at the end of life. I discovered how roles are deeply anchored in social relation and in the body, two aspects of life greatly threatened at the end of life. I realized that roles can be seen as metaphors of our relationships to the world and therefore cannot only express but create our reality. I consider how roles and Landy’s method could be used as a reflective tool for caregivers for more ethical practices. I discovered how roles and their expression within a multimodal environment could be used as a pretext to facilitate the act of storytelling that can be challenging at the end of life for dying individuals. Leaning into the creative process, I also realized as an artist and becoming therapist the power of art, creativity and intersubjectivity to relate to the world we live in and challenge it. The autoethnographic aspect of the quest showed me how transformative this type of research process can be.

Divisions:Concordia University > Faculty of Fine Arts > Creative Arts Therapies
Item Type:Graduate Projects (Non-thesis)
Authors:Cormier, Émilie
Institution:Concordia University
Degree Name:M.A.
Program:Creative Arts Therapies (Drama Therapy Option)
Date:July 2020
Keywords:roles, end-of-life, role method, role taxonomy, Robert Landy, metaphor, animation short film, dying, Elizabeth Kübler Ross
ID Code:986989
Deposited By: �milie Cormier
Deposited On:20 Jul 2020 13:45
Last Modified:28 Jul 2020 14:43


Anderson, L. (2006). Analytic autoethnography. Journal of contemporary ethnography, 35(4), 373-395. https://doi.org/10.1177/0891241605280449
Archer, S., Buxton, S., & Sheffield, D. (2015). The effect of creative psychological interventions on psychological outcomes for adult cancer patients: A systematic review of randomised controlled trials. 24(1), 1‑10. https://doi.org/10.1002/pon.3607
Barker, H. (2004). Death, the One and the Art of Theatre. Routledge.
Blais, C. (Director). (2019). Les vêtements (Clothing) [Film]. Caroline Blais; Carolyne Goyette.
Bourgeois-Guérin, V. (2010). La souffrance en lien avec les écueils de la communication chez les femmes âgées atteintes de cancer incurable. Canadian Journal on Aging / La Revue canadienne du vieillissement, 29(4), 529‑541. https://doi.org/10.1017/S071498081000053X
Bourgeois-Guérin, V. (2013). Un corps éprouvé: La souffrance et l’expérience du corps chez les femmes âgées atteintes d’un cancer incurable. Recherches féministes, 26(1), 151-170. https://doi.org/10.7202/1016901ar
Bourgeois-Guérin, V., Van Pevenage, I., & Durivage, P. (2018). Souffrances et relations à autrui : Paroles d’intervenants sur les souffrances d’hommes âgés atteints d’un cancer incurable. Revue internationale de soins palliatifs, 33(1), 15. https://doi.org/10.3917/inka.181.0015
Brook, P. (1996). The empty space: A book about the theatre: Deadly, holy, rough, immediate. Simon and Schuster. (Original work published 1968)
Byock, I. (2002). The meaning and value of death. Journal of Palliative Medicine, 5(2), 279‑288. https://doi.org/10.1089/109662102753641278
Chang, H. (2008). Autoethnography. In Autoethnography as method (pp.43-57). Left Coast Press.
Chang, H. (2016). Autoethnography in health research: Growing pains? Qualitative Health Research, 26(4), 443‑451. https://doi.org/10.1177/1049732315627432
Châtel, T. (2010). Éthique du «prendre soin»: Sollicitude, care, accompagnement. Traité de bioéthique, 84-94. https://doi.org/10.3917/eres.hirsc.2010.01.0084
Commission sur les soins de fin de vie. (2019). Rapport sur la situation des soins de fin de vie au Québec. Gourvernement du Québec, Institut national d’excellence en santé et services sociaux. file:///Users/emiliecormier/Downloads/509-20190403%20(2).pdf
Craig, R. W. (2004). Hospital narratives: “I remember you”—a brief encounter in palliative care. Journal of Palliative Care, 20(1), 57‑58. https://doi.org/10.1177/082585970402000111
Des Aulniers, L. (1997). Bruit du temps jusqu’à silence de mort. In Mourir aujourd’hui. Les nouveaux rites funéraires (pp.197-222). Odile Jacob.
Dubé, G. (2016). L’autoethonographie, une méthode de recherche inclusive. Repéré de https://www. uqar. ca/uqar/universite/a-proposdeluqar/departements/psychosociologie_et_travail_social/presences-vol9-2-dubelautoethnographie-une-methode-de-recherche-inclusive. pdf.
Emanuel, L., Bennett, K., & Richardson, V. E. (2007). The dying role. Journal of Palliative Medicine, 10(1), 159‑168. https://doi.org/10.1089/jpm.2006.0134
Feifel, Herman. (1965). The meaning of death. McGraw-Hill Book. (Original work published 1959)
Fleming, J., Farquhar, M., Brayne, C., & Barclay, S. (2016). Death and the oldest old: Attitudes and preferences for end-of-life care - qualitative research within a population-based cohort study. Plos One, 11(4). https://doi.org/10.1371/journal.pone.0150686
Frankl, V. E. (2006). Man's search for meaning. Beacon Press. (Original work published 1959)
Frydman, J. S. (2016). Role theory and executive functioning: Constructing cooperative paradigms of drama therapy and cognitive neuropsychology. The Arts in Psychotherapy, 47, 41‑47. https://doi.org/10.1016/j.aip.2015.11.003
Gergen, K. J., & Gergen, M. M. (2018). Doing things with words: Toward evocative ethnography. Qualitative Research in Psychology, 15(2-3), 272-286. https://doi.org/10.1080/14780887.2018.1430004
Grumann, M. M., & Spiegel, D. (2003). Living in the face of death: Interviews with 12 terminally ill women on home hospice care. Palliative and Supportive Care, 1(1), 23‑32. https://doi.org/10.1017/S1478951503030116
Hartley, N. (2013). End of Life Care: A guide for therapists, artists and arts therapists. Jessica Kingsley Publishers.
Hartley, N., & Payne, M. (2008). The creative arts in palliative care. Jessica Kingsley Publishers.
Hefez, S. (2010). Contre-transfert et résonance: Le thérapeute en présence du patient. Cahiers critiques de thérapie familiale et de pratiques de réseaux, (2), 157-169. https://doi.org/10.3917/ctf.045.0157
Helenius, T. (2012). " As if" and the surplus of being in Ricoeur's poetics. Ricoeur Studies/Etudes Ricoeuriennes, 3(2). https://doi.org/10.5195/ERRS.2012.113
Howe, E. (2016). The “dying role”: A new path, already well trodden. Psychiatry, 79(3), 208‑211. https://doi.org/10.1080/00332747.2016.1222159
Institut de la statistique du Québec. (2018). Bilan démographique du Québec. Édition 2018. Québec. https://www.stat.gouv.qc.ca/statistiques/population-demographie/bilan2018.pdf
Jaaniste, J. (2011). Dramatherapy and spirituality in dementia care. Dramatherapy, 33(1), 16-27. https://doi.org/10.1080/02630672.2011.558355
Jaaniste, J., Linnell, S., Ollerton, R. L., & Slewa-Younan, S. (2015). Drama therapy with older people with dementia—Does it improve quality of life? The Arts in Psychotherapy, 43, 40-48. https://doi.org/10.1016/j.aip.2014.12.010
Jacques, J.F. (2016). Intersubjectivity in autobiographical performance in dramatherapy. In S. Pendzick, R. Emunah, & D.R. Johnson (Eds.), The self in performance (pp.97-110). Springer. https://doi.org/10.1057/978-1-137-53593-1_7
Jankalévitch, I. (1977). Le mystère et le phénomène de la mort. In La mort (pp.5-35). Flammarion.
Kearney, R. (2011). Ricoeur: Dying to live ‘for others’. Philosophy & Social Criticism, 37(2), 221-228. https://doi.org/10.1177/0191453710387075
Krasanakis, S. (2017). The influence of Robert Landy: He did it his way. Drama Therapy Review, 3(1), 19-25. https://doi.org/10.1386/dtr.3.1.19_7
Kübler-Ross, E. (2005). On death and dying. Routedge. (Original work published 1969)
Landy, R. J. (1990). The concept of role in drama therapy. The Arts in Psychotherapy, 17(3), 223‑230. https://doi.org/10.1016/0197-4556(90)90005-B
Landy, R. J. (1991a). A taxonomy of roles: A blueprint for the possibilities of being. The Arts in Psychotherapy, 18(5), 419‑431. https://doi.org/10.1016/0197-4556(91)90054-E
Landy, R. (1991b). The dramatic basis of role theory. The Arts in Psychotherapy, 18(1), 29‑41. https://doi.org/10.1016/0197-4556(91)90005-U
Landy, R. J. (1992). The drama therapy role method. Dramatherapy, 14(2), 7‑15. https://doi.org/10.1080/02630672.1992.9689810
Landy, R. J. (1993). Persona and performance: The meaning of role in drama, therapy, and everyday life. The Guilford Press.
Landy, R. J. (1994). Drama therapy: Concepts, theories and practices. Charles C Thomas Publisher.
Landy, R. J. (2008). The couch and the stage: Integrating words and action in psychotherapy. Jason Aronson.
Landy, R.J. (2017, July 1). Why do I make circles? Psychology Today. https://www.psychologytoday.com/intl/blog/couch-and-stage/201707/why-do-i-make-circles
Landy, R.J. (n/a). Communion [Online image]. From Squaring the circle series. https://www.robertlandy.com/2019/7/4/cfcnyrs63cmbmtcp600viyx9h955lz
Landy, R.J. (n/a). Tyger, tyger burning bright [Online image]. From Squaring the circle series. https://www.robertlandy.com/xoq9rz0erpdwrq2luia1n5wl0a3va6
Landy, R.J. (n/a). Totem [Online image]. From Squaring the circle series. https://www.robertlandy.com/rp11fy0pfgumijhjcafuv6abmdklre
Landy, R.J., & Butler, J.D. (2012). Assessment through role theory. In D.R. Johnson, S. Pendzick, & S. Snow (Eds.), Assessment in drama therapy (pp. 148-176). Charles C Thomas.
Leavy, P. (2012). Fiction and critical perspectives on social research: A research note. Humanity & Society, 36(3), 251-259. https://doi.org/10.1177/0160597612451244
Leavy, P. (2015). Narrative inquiry and fiction-based research. In Method meets art (2nd ed., pp.39-69). The Guilford Press.
Leonard, R., Horsfall, D., Noonan, K., & Rosenberg, J. (2017). Identity and the end-of-life story: A role for psychologists. Australian Psychologist, 52(5), 346‑353. https://doi.org/10.1111/ap.12270
Lipsitt, D. R. (2016). The “dying role”: Its time had come. Psychiatry, 79(3), 216‑226. https://doi.org/10.1080/00332747.2016.1222198
Lowrie, D., Ray, R., Plummer, D., & Yau, M. (2018). Exploring the contemporary stage and scripts for the enactment of dying roles: A narrative review of the literature. OMEGA - Journal of Death and Dying, 76(4), 328‑350. https://doi.org/10.1177/0030222817696541
Lowrie, D., Ray, R., Plummer, D., & Yau, M. (2019a). Alignment and mismatch in role relations at end-of-life: A constructivist grounded theory study. Death Studies, 1‑10. https://doi.org/10.1080/07481187.2019.1648330
Lowrie, D., Ray, R., Plummer, D., & Yau, M. (2019b). Examining the transitions between living and dying roles at end-of-life. Death Studies, 43(10), 601‑610. https://doi.org/10.1080/07481187.2018.1504836
Lundquist, M. (2017). Fathers facing advanced cancer: An exploratory study. Journal of Social Work in End-of-Life & Palliative Care, 13(4), 266‑283. https://doi.org/10.1080/15524256.2017.1403410
Luvaas, B. (2019). Unbecoming: The aftereffects of autoethnography. Ethnography, 20(2), 245-262. https://doi.org/10.1177/1466138117742674
McGarrigle, J. G. (2018). Getting in tune through arts-based narrative inquiry. Irish Educational Studies, 37(2), 275-293. https://doi.org/10.1080/03323315.2018.1465837
Mckechnie, R., Macleod, R., & Keeling, S. (2007). Facing uncertainty: The lived experience of palliative care. Palliative and Supportive Care, 5(4), 367‑376. https://doi.org/10.1017/S1478951507000569
Mckinlay, E. M. (2001). Within the circle of care: Patient experiences of receiving palliative care. Journal of palliative care, 17(1), 22-29. https://doi.org/10.1177/082585970101700104
Merleau-Ponty, M. (1945). Phénoménologie de la perception. Gallimard.
Mermikides, A., & Bouchard, G. (2016). Introduction. Performance and the Medical Body (pp.1-20). Bloomsbury Publishing.
Miller, B. J. (2015, March). What really matters at the end of life [Video]. TED Conferences. https://www.ted.com/talks/bj_miller_what_really_matters_at_the_end_of_life
Moon, B. L., & Hoffman, N. (2014). Performing art-based research: Innovation in graduate art therapy education. Art Therapy, 31(4), 172-178. https://doi.org/10.1080/07421656.2015.963485
Morrow, S. L. (2005). Quality and trustworthiness in qualitative research in counseling psychology. Journal of Counseling Psychology, 52(2), 250‑260. https://doi.org/10.1037/0022-0167.52.2.250
M’uzan, M. (1977). De l’art à la mort. Gallimard.
Napier, S. J. (2005). The problem of existence in Japanese animation. Proceedings of the American philosophical society, 149(1), 72-79.
Ngunjiri, F. W., Hernandez, K. A. C., & Chang, H. (2010). Living autoethnography: Connecting life and research. Journal of research practice, 6(1), E1-E1.
Nguyen, K. (2012). Exploring patient perspective at end of life: Qualitative interviews with terminally ill patients. [Medecine thesis, Yale University]. Yale Medicine Thesis Digital Library. http://elischolar.library.yale.edu/ymtdl/1746
Noyes, R., & Clancy, J. (2016). The dying role: Its relevance to improved patient care. Psychiatry, 79(3), 199‑205. https://doi.org/10.1080/00332747.2016.1222153 (Original work published 1977)
O’Hara, S. (2018). Autoethnography: The science of writing your lived experience. HERD: Health Environments Research & Design Journal, 11(4), 14-17. https://doi.org/10.1177/1937586718801425
Ohnsorge, K., Rehmann-Sutter, C., Streeck, N., & Gudat, H. (2019). Wishes to die at the end of life and subjective experience of four different typical dying trajectories. A qualitative interview study. PLOS ONE, 14(1). https://doi.org/10.1371/journal.pone.0210784
Oldford, B. (2016). Living on the land: Exploring inuit translocation a visual autoethnographic experiment in animated database-documentary. [Graduate projects (Non-thesis), Concordia University]. Spectrum. https://spectrum.library.concordia.ca/981138/
Parker-Oliver, D. (2000). The social construction of the “dying role” and the hospice drama. OMEGA - Journal of Death and Dying, 40(4), 493‑512. https://doi.org/10.2190/YT9D-12Y2-54LY-TCMN
Patel, I. (Director). (1977). The bead game [Film]. National Film Board of Canada.
Patel, I. (Director). (1978). Afterlife [Film]. Derek Lamb; National Film Board of Canada.
Pentassuglia, M. (2017). “The art(ist) is present”: Arts-based research perspective in educational research. Cogent Education, 4(1). https://doi.org/10.1080/2331186X.2017.1301011
Pinnegar, S., & Daynes, J. G. (2007). Locating narrative inquiry historically. Handbook of narrative inquiry: Mapping a methodology, 3-34. https://doi.org/10.4135/9781452226552.n1
Porter, L. (2003). Death in transformation: The importance of impasse in drama therapy. The arts in psychotherapy, 30, 101-107. https://doi.org/10.1016/S0197-4556(03)00025-X
Pynor, H. (2016). On the emergent properties of death: When words fall apart. In A. Mermikides, & G. Bouchard (Eds.), Performance and the Medical Body (pp.173-189). Bloomsbury Publishing.
Redhouse, R. (2014). Life-story; meaning making through dramatherapy in a palliative care context. Dramatherapy, 36(2‑3), 66‑80. https://doi.org/10.1080/02630672.2014.996239
Richardson, L. (2000). New writing practices. Sociology of Sport Journal,17(1), 5-20. https://doi.org/10.1123/ssj.17.1.5
Russo, S. (2018). Meeting through touch. Dramatherapy, 39(2), 113‑122. https://doi.org/10.1080/02630672.2018.1484150
Sajnani, N., Marxen, E., & Zarate, R. (2017). Critical perspectives in the arts therapies: Response/ability across a continuum of practice. The Arts in Psychotherapy, 54, 28-37. https://doi.org/10.1016/j.aip.2017.01.007
Sikka, T. (2019). Barriers to Access: A Feminist Analysis of Medically Assisted Dying and the Experience of Marginalized Groups. OMEGA-Journal of Death and Dying, 0030222819873770. https://doi.org/10.1177/0030222819873770
Spry, T. (2001). Performing autoethnography: An embodied methodological praxis. Qualitative Inquiry, 7(6), 706‑732. https://doi.org/10.1177/107780040100700605
Spry, T. (2011). Body, paper, stage: Writing and performing autoethnography. Routledge.
Tracy, S. J. (2010). Qualitative quality : Eight “big-tent” criteria for excellent qualitative research. Qualitative Inquiry, 16(10), 837‑851. https://doi.org/10.1177/1077800410383121
Vallerand, R. J., & Rip, B. (2006). Le soi: Déterminants, conséquences et processus. In R.J. Vallerand (Ed.), Les fondements de la psychologue sociale (pp.83-140). Chenelière éducation.
Yedidia, M. J., & MacGregor, B. (2001). Confronting the Prospect of Dying: Reports of Terminally Ill Patients. 22(4), 13. https://doi.org/10.1016/S0885-3924(01)00325-6
Williams, B. M. (2017). Role power: Using role theory in support of ethical practice. Drama Therapy Review, 3(1), 131-149. https://doi.org/10.1386/dtr.3.1.131_1
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